Friday, February 4, 2011

Sorrow & Joy... Let the games begin!!!!


Today we met with the entire team set to work with Rachel. I came into the meeting sick with worry but now I realize I was over-worrying. Everyone was on the ball and ready to work. I found out that the ECEP team will be meeting one more time with not only Chris and I; but her entire therapy team to make sure she is getting the services needed to give her the best chance possible to overcome her Cerebral Palsy challenges. She will be in physical therapy, pool, gym, occupational therapy, speech therapy, and probably itsy bitsy yoga and even a music class. It will be intense not only for (the PT and OT will likely be at times painful) but for us to make sure everything is taken care of. I'm grateful at least she will have so many good resources available but sad she has to deal with this.

I think what made me so sad for her yesterday and today was the overwhelming theme that this is very serious and she will likely have doors closed to her. I started feeling this way yesterday morning at 7 am when I was watching that campy chick flick, Center Stage on Oxygen. For those who have not seen this poorly written, poorly acted, yet incredibly addicting movie it is about ballet dancers and all this behind the scenes drama. I danced till I was 11 and got diagnosed with RA. I love to see dancing movies and always wished I could move like that. It makes me sad that Rachel will probably feel limited as I. It made me sad that she will have these stupid limitations when she has such determination! It had me worry if kids will tease her because she walks odd or one day or if she will feel sad because she is the last picked for kickball.

As I was thinking all of this I remembered listening to Katy Perry's song "Firework" and there are the following lyrics:
Maybe you're reason why all the doors are closed
So you could open one that leads you to the perfect road

It kind of renewed my hope. Just like I've had doors closed due to my RA and other health issues it is what led me to where I am now and who I am. God doesn't make mistakes. I know He has watched over me and will watch over Rachel. She will grow strong because of her trials and one day help others. Perhaps becoming a drama filled ballerina is out of her sights but something great will be waiting for her whatever it may be.

5 comments:

  1. She is a trooper. And how wonderful that so many people are going to be working together to ensure she gets the best help and treatment available. And my goodness she is darling!

    ReplyDelete
  2. Thank you for sharing Francisca. It sounds like everyone is in place and ready to go for your beautiful girl! I know that she will have all the support her family can give, I know its hard...but you will do it. :) xoxoxo

    ReplyDelete
  3. If she is anything like her mother she will push to strive... Rachel will only feel as limited as you treat her. You are a strong woman and you will do your best to help her. I love that you have things moving along for her treatment! Huge hugs...

    ReplyDelete
  4. Rachel is such a sweet and bubbly child I don't think that she'll let anything hold her back! I think it's wonderful that you have such a great team working with her. We are hoping for the best for sweet Rachel!

    ReplyDelete

Friday, February 4, 2011

Sorrow & Joy... Let the games begin!!!!


Today we met with the entire team set to work with Rachel. I came into the meeting sick with worry but now I realize I was over-worrying. Everyone was on the ball and ready to work. I found out that the ECEP team will be meeting one more time with not only Chris and I; but her entire therapy team to make sure she is getting the services needed to give her the best chance possible to overcome her Cerebral Palsy challenges. She will be in physical therapy, pool, gym, occupational therapy, speech therapy, and probably itsy bitsy yoga and even a music class. It will be intense not only for (the PT and OT will likely be at times painful) but for us to make sure everything is taken care of. I'm grateful at least she will have so many good resources available but sad she has to deal with this.

I think what made me so sad for her yesterday and today was the overwhelming theme that this is very serious and she will likely have doors closed to her. I started feeling this way yesterday morning at 7 am when I was watching that campy chick flick, Center Stage on Oxygen. For those who have not seen this poorly written, poorly acted, yet incredibly addicting movie it is about ballet dancers and all this behind the scenes drama. I danced till I was 11 and got diagnosed with RA. I love to see dancing movies and always wished I could move like that. It makes me sad that Rachel will probably feel limited as I. It made me sad that she will have these stupid limitations when she has such determination! It had me worry if kids will tease her because she walks odd or one day or if she will feel sad because she is the last picked for kickball.

As I was thinking all of this I remembered listening to Katy Perry's song "Firework" and there are the following lyrics:
Maybe you're reason why all the doors are closed
So you could open one that leads you to the perfect road

It kind of renewed my hope. Just like I've had doors closed due to my RA and other health issues it is what led me to where I am now and who I am. God doesn't make mistakes. I know He has watched over me and will watch over Rachel. She will grow strong because of her trials and one day help others. Perhaps becoming a drama filled ballerina is out of her sights but something great will be waiting for her whatever it may be.

5 comments:

  1. She is a trooper. And how wonderful that so many people are going to be working together to ensure she gets the best help and treatment available. And my goodness she is darling!

    ReplyDelete
  2. Thank you for sharing Francisca. It sounds like everyone is in place and ready to go for your beautiful girl! I know that she will have all the support her family can give, I know its hard...but you will do it. :) xoxoxo

    ReplyDelete
  3. If she is anything like her mother she will push to strive... Rachel will only feel as limited as you treat her. You are a strong woman and you will do your best to help her. I love that you have things moving along for her treatment! Huge hugs...

    ReplyDelete
  4. Rachel is such a sweet and bubbly child I don't think that she'll let anything hold her back! I think it's wonderful that you have such a great team working with her. We are hoping for the best for sweet Rachel!

    ReplyDelete