Wednesday, May 16, 2012

I have a Pretty Pink Precious PRINCESS!!!

Rachel is doing great these days!  I do wonder where she gets it though sometimes!  That girl is just crazy girl in a sea of boys.  


She spends her day dancing, playing with her babies, dressing up, singing, and playing with her stuffed animals.  Rachel is very very smart and special.  She does these real complicated large puzzles Harmon just learned how to do.  She sits and masters it amazingly well.  She loves to hang out with Miriam, and I all the time.  I worry because she doesn't like to play a lot with her brothers.  They are too boy for her.  But she loves everyone who comes over for whatever reason and dances for them.



The Cerebral Palsy is not even really noticeable to me or non-expert type people.  She is so physical.  She can do a cart wheel now!  What I love is how she is just always moving and climbing things.  Instead of running she "prances".  It is so adorable.  For now she is out of her plastic orthotics.  Rachel just hated them and every day she would fight us.  We are doing something called Kineseo tape.  It is the stuff athletes use and it is supposed to strengthen her muscles.  She loves getting taped even though it is a process that takes about an hour to do each week.  I told her it was "dancer tape" like they use on Dance Moms.  She wants to be a dancer so she figures it is part of her "training".  That is what is so cool about Rachel.  She has the determination to make her dreams come true.


What to do for school is a big question.  Having been through special education for Harmon and get hit by the sea of ridiculous bureaucracy I wanted to keep it private for therapy and pre-k.  Honestly everyone is nice and trying in LCPS, it is just with state budget cuts they just want to cut the necessary programs to help kids thrive.  


So we assumed since Rachel is doing well we would avoid the public schools DD-Pre K.  The problem is we found she is green-lighted for full services.  It is funny b/c I've been fighting for almost a year now for Harmon to get the right services and than the child I bypass gets an automatic green light.  I'm confused because everyone tells me CP is something that needs constant care and she gets a lot of services through Early Intervention.  But Rachel is so much more than a diagnoses.  She is a tough chick and I don't want people telling her she is anything less than amazing and perfect.


So I don't know what Chris and I will decide.  I do know though that whatever path we choose she will do well.  This is a really smart strong little princess and I have no doubt she is going to kick butt in life!

1 comment:

  1. She gets her "never say die" attitude from you. She is just like you... Amazing and beautiful.

    ReplyDelete

Wednesday, May 16, 2012

I have a Pretty Pink Precious PRINCESS!!!

Rachel is doing great these days!  I do wonder where she gets it though sometimes!  That girl is just crazy girl in a sea of boys.  


She spends her day dancing, playing with her babies, dressing up, singing, and playing with her stuffed animals.  Rachel is very very smart and special.  She does these real complicated large puzzles Harmon just learned how to do.  She sits and masters it amazingly well.  She loves to hang out with Miriam, and I all the time.  I worry because she doesn't like to play a lot with her brothers.  They are too boy for her.  But she loves everyone who comes over for whatever reason and dances for them.



The Cerebral Palsy is not even really noticeable to me or non-expert type people.  She is so physical.  She can do a cart wheel now!  What I love is how she is just always moving and climbing things.  Instead of running she "prances".  It is so adorable.  For now she is out of her plastic orthotics.  Rachel just hated them and every day she would fight us.  We are doing something called Kineseo tape.  It is the stuff athletes use and it is supposed to strengthen her muscles.  She loves getting taped even though it is a process that takes about an hour to do each week.  I told her it was "dancer tape" like they use on Dance Moms.  She wants to be a dancer so she figures it is part of her "training".  That is what is so cool about Rachel.  She has the determination to make her dreams come true.


What to do for school is a big question.  Having been through special education for Harmon and get hit by the sea of ridiculous bureaucracy I wanted to keep it private for therapy and pre-k.  Honestly everyone is nice and trying in LCPS, it is just with state budget cuts they just want to cut the necessary programs to help kids thrive.  


So we assumed since Rachel is doing well we would avoid the public schools DD-Pre K.  The problem is we found she is green-lighted for full services.  It is funny b/c I've been fighting for almost a year now for Harmon to get the right services and than the child I bypass gets an automatic green light.  I'm confused because everyone tells me CP is something that needs constant care and she gets a lot of services through Early Intervention.  But Rachel is so much more than a diagnoses.  She is a tough chick and I don't want people telling her she is anything less than amazing and perfect.


So I don't know what Chris and I will decide.  I do know though that whatever path we choose she will do well.  This is a really smart strong little princess and I have no doubt she is going to kick butt in life!

1 comment:

  1. She gets her "never say die" attitude from you. She is just like you... Amazing and beautiful.

    ReplyDelete